Five hundred twenty five thousand six hundred minutes, how do you measure a year in the life? Or in this case, how do you measure a year without one?
That’s what the Fisher family has done since husband and father, Daron Fisher passed away from brain cancer on August 9th, 2013. Today, Daron’s wife Beth and her two children, Emory and Alana, begin year number two without him. Time marches on, you never get over it, you simply get on with it.
I’m reposting The Sunday Series in which I interviewed Beth and told Daron’s story for two reasons….one to honor the one-year anniversary, the second because there is a big event coming up shortly for Keep Punching, the non-profit which Beth and Daron created while he was still alive, dedicated to raising awareness and research money to fight brain cancer.
On October 11th Keep Punching is co-hosting a Golf Tournament with the FOP Sheriffs Lodge #25 – Rocky Point Golf Course, 1935 Back River Neck Road Baltimore, MD 21221. Please contact email@example.com to register. Calling all golfers, to get in the game and make a difference.
And now… The Sunday Series 6: Keep Punching
Throughout history there have been epic battles fought in the ring: Ali vs Frazier. Leonard vs Hearns. Tyson vs almost anyone in the 1st round. Even the make-believe heavyweight fights we love to watch up on the big screen, including the king of them all, Rocky.
Then there are the epic fights which might take place just around the corner, sometimes in the shadows, without fanfare, but with a much deeper meaning than a simple sporting event. A battle for survival. This is the story of one such fighter, Daron Fisher.
It was August of 2010, Daron, a healthy 43-year-old suffers a seizure on the train ride back from New York. He was returning from helping with a marketing campaign for MGH advertising. For Daron, the job he loved was about to take a back seat to a bigger challenge; tests showed a small mass inside his brain, a tumor. Daron’s wife Beth remembers the time well. She recalls the need for immediate surgery and then test, after test, after test. Weeks passed and then what Beth describes as an “insane sick feeling”, when the doctor read the results… brain cancer, specifically a glioblastoma, prognosis on survival with treatment, about 15 months. The good news, the specialists said the tumor was small, about the size of a jelly bean and when they removed it they got it “all”. Except when it comes to the “c” word, getting it all doesn’t mean it’s all over. A tumor in the brain is like a pile of sand, you can remove it but there may be a grain or two that shakes loose. Despite Daron’s incredible positive attitude, healthy living, better diet, increased exercise and the like… the smallest of possibilities, that tiny shadow of a doubt, that grain of sand, re-surfaced.
The tumor returned.
The week of Thanksgiving 2011, Daron was back in surgery, but this time the tumor was too close to a blood vessel in the brain and the doctors couldn’t get it “all”. Time was no longer on Daron’s side. Throughout the ordeal Beth and Daron chose to keep the diagnosis a secret from their young children, Emory and Alana. They didn’t want to burden their kids with worry, fear, sadness and the realization that their father and the life they had come to know would never be the same. So for Emory and Alana life went on pretty much uninterrupted. Daron still coached Emory’s baseball games, went to Alana’s gymnastic practices and the family did what families do best when love is at its core… spend time together, enjoying this journey we call life, made all the more fulfilling when you share it with the people who share your heart.
In the meantime, Daron went on secret doctor appointments, endured chemotherapy, radiation, he sought out aggressive treatment through the National Cancer Institute, and Beth and Daron were aided and supported by a great friend and advocate, Ellen Hakim. But despite everyone’s best efforts and a number of alternative therapies, by October of 2012 things were getting worse, not better. To try a device called Novacure, an electromagnetic headgear designed at “zapping” the brain cancer, Daron would have to shave his head…now the kids needed to know.
Beth remembers she had never used the “c” word, but now there was no choice. Though Beth says telling their children was not the “most awful thing ever”. “I imposed expectations that didn’t surface”, says Beth. And her young children took the news in stride, proving their resilience, yet at the same time shielded by a lack of life experience to truly comprehend the outcome. An outcome, which unless there was a miracle, would one day leave them without their “Daddy”.
As time ticked away, the cancer continued to take its toll and the calendar turned to 2013. In January, the illness was robbing Daron of his strength and he was forced to go on disability. Even worse, he could no longer do one of the things he adored… playing guitar. It was devastating to Daron, but his will would not be defeated. Daron started telling Beth stories, including one from years ago in which his uncle, a media promoter, had secured a media kit from the movie Rocky II and had given it to Daron and his brother. The poster, signed by Sylvester Stallone himself, read “Keep Punching”. An idea was born.
Daron and Beth wanted to find a way to give back. There was a special researcher, Dr. Fabio Iwamoto, whom they met at the National Cancer Institute. Dr. Iwamoto had gone above and beyond, following their progress, checking in with late night phone calls, showing caring and compassion. How great would it be Beth and Daron thought, if they could find a way to raise money to fund Dr. Iwamoto’s research at Columbia University in New York. A small idea became a big hit and Keep Punching, with a big hand from Beth’s good friend Jen Johnson, orchestrated a major fundraiser on March 23rd of 2013. More than 225 people attended the event at Frazier’s Restaurant and Bar in Hampden, Maryland… even Daron was able to make it, and so together a village of love and support raised $20,000. They say it takes a village to raise a child, it takes that same village when a family is in pain, providing love and support so desperately needed to seem them through.
Dr. Carroll, Dr. Iwamoto and the Keep Punching Team
Daron Writing $20,000 Check for Columbia University
Keep Punching was a huge success (http://keeppunching.org/). And there was another milestone to come. The Fisher family and the Hakim family traveled to Philadelphia in the early spring. If you’re going to keep punching, it means you must be fighting….and because of Daron’s hard work and intensive therapy, he was able to accomplish a dream. Daron climbed the Rocky steps, and for a moment, make-believe became reality. For a moment, the “c” word changed from cancer to congratulations. For a moment, Daron got the chance to taste victory, a delicacy not so prevalent in the 2-1/2 years since his life had changed forever. And Daron was already beating the odds. The doctors said 15 months. By this time, Daron had doubled down.
Beth met Daron back in 1996, both of them worked at TBC advertising agency in Baltimore. They were wed in 1999, and danced their first dance to More Today than Yesterday… “I love you more today than yesterday, but not as much as tomorrow”…lyrics that launched Beth and Daron’s lives together and still ring true today. As the years moved forward, Daron and Beth brought two children into the world, and created layer upon layer of memories. But on August 9th, 2013, their lives together became just that… as Daron passed away, with his family by his side, succumbing to the brain cancer which three years earlier surfaced on the train tracks heading home.
When someone you love becomes a memory, that memory becomes a treasure. Inside all of us are hidden treasures. The great challenge in life is not to die with that treasure hidden inside you. Daron Fisher brought his to the surface for all the world to see, as a loving husband and a devoted father. He displayed great wit, especially in his work as a talented copywriter. Daron was honored posthumously with a Lifetime Achievement Award by the American Advertising Foundation. But his greatest rewards were his family and friends. Beth says, “everyone who knew Daron and knew his wit and his kindness…everybody loved him, no one could say a bad word about him. He was caring and loving. I want Daron to be remembered for who he was and not for who he became.” It was the cancer that robbed Daron of his freedom of movement, and his ability to think with clarity, but not his spirit. His brain was ravaged by the beast, but his heart still full with the more than forty years of the love he gave and received.
A fighter to the end. Muhamad Ali called himself the Greatest of All Time. Daron Fisher also went the distance. He gave it all he had, fought more rounds than any scorecard could ever record and in the end, went down for the count. But there’s a huge difference between losing a fight in the ring and the one outside the ropes. For Beth, for Emory, for Alana…for all the family and friends who Daron touched and who gave that love right back…that village knows another champion.
One of The Greatest, Daron Fisher.
Until next time, thanks for taking the time.
(Keep Punching remains a vibrant non-profit, which supports patients, health-care providers and researchers in their fight to prevent and eradicate brain cancer. Please go to http://keeppunching.org/ and visit the Facebook page, https://www.facebook.com/Keeppunchinginc, to learn more about the organization, attend one of the upcoming events, or to make a donation.)
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Mark Brodinsky, Author, Huffington Post Blogger, (http://www.huffingtonpost.com/mark-brodinsky/),Financial Services
The #1 Amazon Best-Seller: It Takes 2. Surviving Breast Cancer: A Spouse’s Story.